How many people have ARF and/or RHD?

Data from the 4 jurisdictional registers show that, as at 31 December 2017, almost 6,400 living persons were recorded on one or more of the 4 jurisdictional registers. Of these:

  • 9 in 10 (89%) were Indigenous Australians
  • 6 in 10 (61%) were female
  • 4 in 10 (41%) were aged 5–14 when diagnosed for the first time
  • the group was spilt evenly between those who only had ARF recorded, those who had only RHD recorded, and those with both ARF and RHD recorded.

Figure 1: People on ARF/RHD registers in Qld, WA, SA and NT as at 31 December 2017, by sex and age at diagnosis

Figure 1: The vertical bar chart shows the number of males and females on ARF/RHD registers side by side. The highest numbers are in the 5–14 years group, where the number of males and females are very similar. In the older age groups, there are more females than males. The overall number of cases declines as age group increases. More information can be found in the data tables.

Source: AIHW analysis of National Rheumatic Heart Disease data collection.