ARF and RHD key performance indicators

Key performance indicator

Data included in report

1. Epidemiology 

1.1. ARF incidence, by confirmation status (Definite/Probable/Possible), age group and

1.1.1. Ethnicity (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

1.1.2. Sex

Included

1.1.3. Indigenous status

Included

1.1.4. Jurisdiction and Indigenous status

Included

1.2. ARF recurrences, by

1.2.1. Ethnicity and age group (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

1.2.2. Sex and age group (rate)

Included, separately

1.2.3. Indigenous status and age group (rate)

Age group (count and rate)

1.2.4. Jurisdiction, Indigenous status and age group (rate)

Jurisdiction (count and rate)

1.2.5. Proportion of all ARF episodes by jurisdiction

Included

1.2.6. Rate per 100 patient-years for patients prescribed prophylaxis (both oral and BPG) by jurisdiction

Included

1.3. ARF and/or RHD deaths, by

1.3.1. Ethnicity (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

1.3.2. Sex and age group (rate)

Sex and age group (count, proportion) separately

1.3.3. Indigenous status and age group (rate)

Not available

1.3.4. Jurisdiction and age group (rate)

Jurisdiction only

1.3.5. Direct or indirect attribution (count and %)

Not available

1.4. RHD point prevalence, by age group and

1.4.1. Ethnicity (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

1.4.2. Sex (rate)

count, proportion (not by age group)

1.4.3. Indigenous status (rate)

count, proportion (not by age group)

1.4.4. Jurisdiction and Indigenous status (rate)

count, proportion (not by age group)

1.4.5. Severity classification (rate)

count, proportion

1.5. RHD incidence, by

1.5.1. Ethnicity and age group (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

1.5.2. Sex and age group (rate)

Included, separately

1.5.3. Indigenous status and age group (rate)

Indigenous status only

1.5.4. Jurisdiction, Indigenous status and age group (rate)

Jurisdiction only

1.5.5. Severity classification and age group (count and %)

Included

1.5.6. Severity classification and detection method (count and %)

Detection method not available due to poor data quality

1.5.7. Previous notification of ARF (definite or probable/possible) and age group (count and %)

Not included due to poor data quality

1.5.8. Severity classification if no previous notification of ARF and age group (count and %)

Included, not by age group.

2. Requirement and uptake of secondary prophylaxis

2.1. BPG secondary prophylaxis administration, by adherence category and

2.1.1. Ethnicity and age group (count and mean %)

Ethnicity not included due to incomplete or inconsistent data capture

2.1.2. Sex and age group (count and mean %)

Included, separately

2.1.3. Indigenous status and age group (count and mean %)

Not available

2.1.4. Jurisdiction and age group (count and mean %)

Jurisdiction only

2.1.5. Median percentage of all scheduled doses

Not available

3. Quality of management

3.1. Priority levels of ARF/RHD cases, by age group and

3.1.1. Ethnicity (count and %)

See measures for RHD severity

3.1.2. Sex (count and %)

3.1.3. Indigenous status (count and %)

3.1.4. Jurisdiction and Indigenous status (count and %)

3.2. Echocardiograms performed within designated timeframes for priority level 1 and 2 RHD cases

3.2.1. Priority level 1 within the previous: 6 months, 7–12 months, >12 months, No echo recorded (count and %)

Not included due to incomplete or inconsistent data capture

3.2.2. Priority level 2 with the previous: 12 months, 13–24 months, >24 months, No echo recorded (count and %)

3.3. Waiting times of RHD cases accepted for cardiac surgery

3.3.1. Wait times: <6 months, 7–12 months, 13–24 months, >24 months, N/A (count and %)

Not included due to incomplete or inconsistent data capture

3.4. Surgical procedures performed, by type and

3.4.1. Ethnicity (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

3.4.2. Sex (count and %)

Included, not by type

3.4.3. Age group (count and %)

Included, not by type

3.4.4. Indigenous status (count and %)

Included, not by type

3.4.5. Jurisdiction (count and %)

Included, not by type

3.5. Deaths within 30 days and 1 year post rheumatic cardiac surgery, by

3.5.1. Ethnicity (count and %)

Ethnicity not included due to incomplete or inconsistent data capture

3.5.2. Sex (count and %)

Not available

3.5.3. Age group (count and %)

Not available

3.5.4. Indigenous status (count and %)

Not available

3.5.5. Jurisdiction (count and %)

Not available

Additional measures:

RHD incidence by region of management

RHD incidence by region of onset

ARF incidence by region of management

ARF incidence by region of onset