Information is limited on the prevalence of female genital mutilation/cutting (FGM/C) in Australia and the health-care needs and service use of girls and women who are affected. A preliminary estimate, based on available data, suggests there could be over 50,000 women and girls living in Australia who may have undergone FGM/C. This estimate is based, however, on several assumptions and data limitations.
This report identifies and discusses what relevant data sources exist in Australia, the potential service contexts in which data are (or could be) captured, and what steps might be taken to improve their systematic collection.
The barriers and limitations inherent in collecting data on a sensitive and complex issue such as FGM/C limit the prospects for improving routinely collected data at a national level; however, there are some opportunities to enhance and develop data, particularly relating to service provision.
The National Hospital Morbidity Database (NHMD) is one national data source providing some information on FGM/C. This report presents data from the NHMD from 2015–16 to 2017–18 on the 477 episodes of admitted patient care where FGM/C was recorded as relevant to the care a patient received (primarily related to childbirth).
This is the second report on FGM/C in Australia published by the Australian Institute of Health and Welfare, the first being Towards estimating the prevalence of female genital mutilation/cutting in Australia (AIHW 2019a).
- Prevalence of female genital mutilation/cutting
- Practising or arranging for FGM/C in Australia
- Health consequences of FGM/C
- Purpose of this report
2. Australian evidence base on FGM/C data
- Family Planning NSW report on FGM/C data collection
- Maternal health studies
- Paediatric studies
- Data sets in other countries
3. Key questions about FGM/C
- Service provision
4. FGM/C data in Australia
- Barriers and limitations to data collection
- Existing data sources containing FGM/C information
- Ability of existing data sources to answer key questions
- Other existing data sources with potential to collect FGM/C data
- Future data opportunities
5. Hospitalisations data from 2015–16 to 2017–18
- Hospitals reporting FGM/C in the NHMD
- Patient demographics
- Diagnoses and procedures
- Limitations of the analysis
6. Role of data classifications and metadata
- ICD/ACHI/ACS classification system
- METeOR metadata
7. Future directions for improving data on FGM/C in Australia
- Potential data set development opportunities
- Suggested metadata development opportunities
- Supporting prerequisites to data development activity
Appendix A: Additional notes on data analysis
Appendix B: Data tables
End matter: Acknowledgments; Abbreviations; Glossary; References; List of tables; List of figures; List of boxes