Classification of dementia
Around 11% of all people included in the study were identified as living with dementia (almost 79,000 people) using dementia diagnosis information available in the linked data. People were identified as living with dementia if they had a record of one or more of the following:
- supplied a dementia-specific medication through the PBS between 1 July 2010 and 31 December 2017 (Table 1)
- hospital admission between 1 July 2010 and 31 December 2017 with a principal or additional diagnosis of dementia (Table 2)
- emergency department presentation between 1 July 2013 and 31 December 2017 with a principal or additional diagnosis of dementia (Table 3)
- Aged Care Funding Instrument assessment between 1 July 2010 and 31 December 2017 with a medical diagnosis of dementia (Table 4)
- died during 2017 and had dementia recorded as an underlying or associated cause of death (Table 5).
Over half of the study cohort (54%) had a record identifying them as having dementia in more than one data source. People who were identified as having dementia in only one data source were typically identified in the APC data (23%) or ACFI data (13%).
Table 1 Codes to identify Alzheimer’s disease in PBS data
Drug name | ATC code |
|---|---|
Donepezil | N06DA02 |
Rivastigmine | N06DA03 |
Galantamine | N06DA04 |
Memantine | N06DX01 |
Table 2 Codes to identify dementia in APC data
Dementia type | ICD-10-AM code |
|---|---|
Alzheimer’s disease | F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9 |
Vascular dementia | F01.0, F01.1, F01.2, F01.3, F01.8, F01.9 |
Fronto-temporal dementia | F02.0 and G31.0(a) |
Dementia in Creutzfeldt-Jakob disease | F02.1 and A81.0(a) |
Dementia in Huntington's disease | F02.2 and G10(a) |
Dementia in Parkinson's disease | F02.3 and G20(a) |
Dementia in human immunodeficiency virus (HIV) disease | F02.4 and B22(a) |
Lewy Body dementia | F02.8 and G31.3(b) |
Dementia in other diseases (remainder) | F02.8 and not G31.3 |
Dementia due to effect of substances | F10.7, F13.7, F18.7 |
Unspecified dementia | F03 and not F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9, F01.0, F01.1, F01.2, F01.3, F01.8, F01.9, F02.0, F02.1, F02.2, F02.3, F02.4, F02.8, F10.7, F13.7, F18.7 |
Delirium superimposed on dementia | F05.1 and not F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9, F01.0, F01.1, F01.2, F01.3, F01.8, F01.9, F02.0, F02.1, F02.2, F02.3, F02.4, F02.8, F03, F10.7, F13.7, F18.7 |
Other degenerative diseases of nervous system, not elsewhere classified(c) | G31 and F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9, F01.0, F01.1, F01.2, F01.3, F01.8, F01.9, F02.0, F02.1, F02.2, F02.3, F02.4, F02.8, F03, F05.1, F10.7, F13.7, F18.7 |
- Indicates that the dementia type is valid regardless of whether the hospitalisation also includes this code.
- Indicates that the dementia type is only valid when the hospitalisation also includes this code.
- AIHW were advised by the AIHW Dementia Expert Advisory Group to include hospitalisations with a principal diagnosis of G31 Other degenerative diseases of nervous system, not elsewhere classified and an additional diagnosis of dementia as a hospitalisation with a principal diagnosis of dementia. This was done previously for the AIHW Dementia in Australia 2012 report.
Table 3 Codes to identify dementia in ED data by classification system
Classification type | Dementia type | Code |
|---|---|---|
SNOMED CT-AU EDRS | Unspecified dementia | 52448006, 12348006, 15662003 |
Dementia in Alzheimer’s disease | 26929004 | |
Delirium superimposed on dementia | 191461002 | |
ICD-9-CM | Senile dementia, uncomplicated | 290.0 |
Presenile dementia | 290.1 | |
Presenile dementia, uncomplicated | 290.10 | |
Presenile dementia, with delirium | 290.11 | |
Presenile dementia, with delusion | 290.12 | |
Presenile dementia, with depression | 290.13 | |
Senile dementia with delusion or depression | 290.2 | |
Senile dementia, with delusion | 290.20 | |
Senile dementia, with depression | 290.21 | |
Senile dementia with delirium | 290.3 | |
Vascular dementia | 290.4 | |
Vascular dementia, uncomplicated | 290.40 | |
Vascular dementia, with delirium | 290.41 | |
Vascular dementia, with delusion | 290.42 | |
Vascular dementia, with depression | 290.43 | |
Other specified senile psychotic conditions | 290.8 | |
Unspecified senile psychotic condition | 290.9 | |
Alcohol-induced persisting dementia | 291.2 | |
Dementia in conditions classified elsewhere | 294.1 | |
Dementia in conditions classified elsewhere, without behavioural disturbance | 294.10 | |
Dementia in conditions classified elsewhere, with behavioural disturbance | 294.11 | |
Dementia, unspecified | 294.2 | |
Dementia, unspecified, without behavioural disturbance | 294.20 | |
Dementia, unspecified, with behavioural disturbance | 294.21 | |
Alzheimer’s disease | 331.0 | |
ICD-10-AM
| Dementia in Alzheimer’s disease | F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9 |
Vascular dementia | F01.0, F01.1, F01.2, F01.3, F01.8, F01.9 | |
Fronto-temporal dementia | F02.0 and G31.0(a) | |
Dementia in Creutzfeldt-Jakob disease | F02.1 and A81.0(a) | |
Dementia in Huntington's disease | F02.2 and G10(a) | |
Dementia in Parkinson's disease | F02.3 and G20(a) | |
Dementia in human immunodeficiency virus (HIV) disease | F02.4 and B22(a) | |
Lewy Body dementia | F02.8 and G31.3(b) | |
Dementia in other diseases (remainder) | F02.8 and not G31.3 | |
Dementia due to effect of substances | F10.7, F13.7, F18.7 | |
Unspecified dementia | F03 and not F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9, F01.0, F01.1, F01.2, F01.3, F01.8, F01.9, F02.0, F02.1, F02.2, F02.3, F02.4, F02.8, F10.7, F13.7, F18.7 | |
Delirium superimposed on dementia | F05.1 and not F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9, F01.0, F01.1, F01.2, F01.3, F01.8, F01.9, F02.0, F02.1, F02.2, F02.3, F02.4, F02.8, F03, F10.7, F13.7, F18.7 | |
| Other degenerative diseases of nervous system, not elsewhere classified(c) | G31 (including G31.0 G31.1, G31.2, G31.3, G31.8 G31.81, G31.88, G31.9) and F00, F00.0, F00.1, F00.2, F00.9, G30, G30.0, G30.1, G30.8, G30.9, F01, F01.0, F01.1, F01.2, F01.3, F01.8, F01.9, F02, F02.0, F02.1, F02.2, F02.3, F02.4, F02.8, F03, F05.1, F10.7, F13.7 (including F13.70, F13.71, F13.79), F18.7, U79.1 |
| Any dementia | U79.1 |
- Indicates that the dementia type is valid regardless of whether the hospitalisation also includes this code.
- Indicates that the dementia type is only valid when the hospitalisation also includes this code.
- AIHW were advised by the AIHW Dementia Expert Advisory Group to include hospitalisations with a principal diagnosis of G31 Other degenerative diseases of nervous system, not elsewhere classified and an additional diagnosis of dementia as a hospitalisation with a principal diagnosis of dementia. This was done previously for the AIHW Dementia in Australia 2012 report.
Table 4 Codes to identify dementia in ACFI data
Dementia type | Description | ACFI code |
|---|---|---|
Dementia in Alzheimer's disease | Includes Dementia in Alzheimer's disease: younger-onset, late-onset, atypical, mixed type and unspecified | 0500 |
Vascular dementia | Includes Vascular dementia: acute onset, multi-infarct dementia, subcortical vascular dementia, mixed cortical and subcortical vascular dementia, other vascular dementia, and vascular dementia unspecified | 0510 |
Dementia in other diseases | Includes dementia in: Pick’s disease, Creutzfeldt-Jakob disease, Huntington’s disease, Parkinson disease, HIV and other specified disease classified elsewhere | 0520 |
Other dementia | Includes: Lewy body, Alcoholic dementia, and Unspecified dementia | 0530 |
Table 5 Codes to identify dementia in NDI data
Dementia type | ICD-10 diagnosis codes: Underlying causes of deaths (UCODs) | ICD-10 diagnosis codes: Associated causes of deaths (ACODs) |
|---|---|---|
Alzheimer’s disease | G30.0, G30.1, G30.8, G30.9 | F00.0, F00.1, F00.2, F00.9, G30.0, G30.1, G30.8, G30.9 |
Vascular dementia | F01.0, F01.1, F01.2, F01.3, F01.8, F01.9 | F01.0, F01.1, F01.2, F01.3, F01.8, F01.9 |
Fronto-temporal dementia | G31.0 | G31.0 |
Lewy body dementia | G31.8 | G31.8 |
Dementia in Creutzfeldt-Jakob disease | N/A | UCOD of A81.0 and ACOD of F03 (Unspecified dementia) |
Dementia in Huntington’s disease | N/A | UCOD of G10 and ACOD of F03 (Unspecified dementia) |
Dementia in Parkinson’s disease | N/A | UCOD of G20 and ACOD of F03 (Unspecified dementia) |
Dementia in human immunodeficiency virus (HIV) disease | N/A | UCOD of B20 and ACOD of F03 (Unspecified dementia) |
Dementia due to effect of substances | F10.7, F13.7, F18.7 | F10.7, F13.7, F18.7 |
Unspecified dementia | F03 | F03 |
Delirium superimposed on dementia | N/A | F05.1 |
Note: According to ICD-10 coding rules, the codes of F00 Dementia in Alzheimer’s disease and F05.1 delirium superimposed on dementia cannot be assigned as an underlying cause of death but can be used to capture additional causes of death.